Blog

  • An open letter for those who have left

        The outside world understands no insight on what happens behind any closed door. Am I right? You're battling your past (in some fashion), tryin...
  • When your faith is shaken

    The moments, the triumphs, the small celebrations have become the puzzle pieces that somehow fit and fill into the bends and cracks that have engraved their way on my heart. I fell asleep for 323 days while he was in the ICU, in a strange bed that I called my "temporary home" and cried myself to sleep while I begged God to let my son live.
  • Pediatric trach with vent & O2 support

  • Feeding tube awareness- Pedi G-tube

  • Humble, soggy pie

    A glimpse into behind the scenes in my home can often be a scary place. My home is my happy place. Happiness in my eyes doesn't signify whether the...
  • Let your dream be battered

          This wasn't my dream.     I had never planned to be a stay at home mother. I went to college for four years and had a job that I was great ...
  • Walking into the New Year---

    HERE'S TO YOU: Whether you navigated to our page by accident, by a social media "click", or by word of mouth-      WE'RE GLAD YOU'RE HERE! 2018 is ...
  • While you dread your Monday morning

    We've stood upon the most beautiful mountains. The air has allowed us to exhale sadness, and the wind has brushed the hurt off of our shoulders. The sun was warm and melted the hurt from the hike that we felt away. Our bruises were rested on mountain tops. Rejuvenated.
  • My nonverbal son

        Have you ever sat and just marinated in the things that you take for granted on a daily basis? The basic things in life that we view as our "ne...
  • To my son who doesn't know he's on a ventilator

       My sweet boy. I see you in all of your glory. I see you crawling, playing and barrel rolling over like you're heavy machinery that'll knock down...
  • Prenatal Diagnosis

    Being handed the news to expect a baby boy and to also expect a life changing medical diagnosis for our son. From one Mother who has been there, HAVE THE BABY SHOWER.
  • About Us

    A little bit about who we are:   We have been successfully home for nearly nine months after a 323 day ICU journey. We are a family of three, plus ...