CDH and CdLS

by Deana Taylor

 

 

   Here are some of the resources that are available online that I've found relatable as a parent to a child who has CDH and CdLS. I've found each of these websites have provided me some amount of guidance, hope, or knowledge. My son has a dual diagnosis of Congenital Diaphragmatic Hernia and Cornelia de Lange Syndrome. Read and enjoy at your own leisure! 

 

ww.cherubs-cdh.org/cdh

 

https://cdhi.org/cdh-research/

 

http://www.cdlsusa.org/

 

http://www.our-kids.org/Archives/Holland.html

 

 

 

DISCLAIMER:

The links above are solely owned and operated by the owners and founders of each entity. My Hero Calls me Mama LLC owns no rights to any of the following links provided. All of the data, material, research, and/ or advise given from each link is that of the organizations'. My Hero Calls me Mama LLC is not affiliated with any of the organizations provided on this page, or held accountable or liable for their use of information.

 

 

 

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