My Hero Calls me Mama LLC, brought to life.

 

   If you've followed my journey as a mother to a medically complex child, or you're just opening up the snippets I choose to share, I invite you along for the ride. My Hero Calls me Mama LLC, has officially opened as my stay at home business, allowing me to stay by my sweet Abel's side, as he tackles his medical and developmental challenges at home.

   I fully intend to help other parents search for their inner fight, to hold onto their hope, and to advocate for their child during the times that might feel like hope has been lost. This might look different, take a less than "normal" approach, or feel like your clock is at a stand still, while the rest of the world keeps moving... Let's come together, and just embrace the ride (whatever the ride might hold). The hug I want others to have, might often be wrapped up in a T-shirt that reminds you of your child, or maybe you'll feel a sense of closeness to another parent who has similar feelings, when you read my words.

   I feel it's important to share why I began my own business... In February of 2017, my son Abel was born. He came into this world with bells and whistles, letting us all know that a warrior had arrived. Abel's underlying condition, Congenital Diaphragmatic Hernia, was what landed him a first class ticket into the ICU. We found out that Abel was born with a rare genetic syndrome, Cornelia de Lange Syndrome, in the first two months he was in the hospital. After many complications, and many obstacles that were overcome, we finally took our son home from the hospital for the first time, 323 days after he was born.

   It has been nearly ten months that we have been home. I'd be lying if I said that all of those ten months have been spent successfully home, but the times admitted back into the hospital have been very brief. The transition home has been far from simple, and has been a path led solely in the footsteps of my nineteen month old, Abel. My husband and I, we just march behind him, and allow him to pave his own journey.

   Since becoming Abel's mother, I have learned more about life, patience, perseverance, and the power of hope than I've ever known. These experiences and situations that have molded me over the last year and a half, I am forever changed.

   My Hero Calls me Mama LLC, comes from a place in me that keeps screaming for me to share with others. It is built on a concrete foundation, in the form of a little boy who has shown me what the definition of a Hero means. In my eyes, I see my Hero, in the heart of my little boy. He is fierce, brave, and truly an old soul.  He is filled with wisdom and courage. His life radiates the purest form of love, and the strongest will I've ever had the pleasure of being a part of. On the darkest days of his life, and in the moments I felt it might be the last day with my child, he seems to find ways to pull the hope out of me that I didn't know was possible. In short, My Hero Calls me Mama.

 

-Dee

(Founder and proud owner of My Hero Calls me Mama LLC)

 

 

 

 This is what going home for the first time looks like after 323 days spent in the ICU

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